[Gregory Pilcher]

I’m sorry your husband is dealing with long Covid. I know it can be debilitating. I am not a health professional. I didn’t get the Covid injections but I did have long Covid. My symptoms were different than your husband’s but I suspect immune dysregulation often is at the heart of it. Corporate medicine was no help. I tried everything suggested by FLCCC (now IMA). The only thing that helped was low dose naltrexone. It was a miracle cure for me. I’d encourage you to investigate it. I just checked and IMA still cites LDN as a core treatment. The difficulty will be finding a practitioner who understands how it works. My own experience says finding the right dose is tricky. It was a trial and error process . We started at 0.5 mg and went up in 0.5 mg increments. In my case, 3 mg proved effective. 3.5 mg didn’t help. Neither did 2.5 mg or anything lower. Once we found the right dose, my symptoms disappeared almost immediately. I had to stay on it for a year. No adverse side effects. I suspect that like lots of things what works for one person may not work for someone else. Here’s a link to IMA’s long covid treatment protocol. Good luck. (I exited the corporate, insurance-based medical system after its COVID failures, including its unwillingness and inability to help with long Covid and its ostrich-like approach to using repurposed meds like LDN.) https://imahealth.org/protocol/i-recover-long-covid-treatment/

[Tracey Holekamp]

I’ve seen this in my practice a lot: The internal trembling can be a thyroid issue- you need to ask for a COMPLETE thyroid panel:

TSH

T3

T4

Reverse T3

Reverse T4

Autoantibodies

[aaronaf]

I saw your question and decided to use it as a trial question for an unusual AI I just discovered in a recent article by Steve K.

Here is a link to AlterAI’s answer: https://alter.systems/p/9e53151c-520d-4b73-b8c9-f8e5c49b2b26

[Dr. Wawa]

There are a great number of published case reports of people losing their hearing right after they got Covid “vaccinations”. I know of two middle-aged female patients who lost all hearing in one ear (a very rare event) right after they got their shots. One of them tells me that corticosteroid treatment and oxygen treatment work better than other treatments.

[peanuts]

I had internal tremor triggered by the COVID jabs. I had two sessions of acupuncture and three days after the second session the tremor stopped. It has not returned. I had the acupuncture over three years ago. The acupuncturist put needles in the soles of my feet. Uncomfortable but not terribly painful, and worth it for resolution of the tremor. Highly recommended!

[Cindi Anderson]

Thanks, my doctor does acupuncture so I just asked him about this. Probably someone who is all TCM would be better at it though. Could you share who the acupuncturist was? Maybe we could reach out and find out what meridians / technique they used.

[peanuts]

Sure. My acupuncturist is in New Zealand and is a TCM practitioner. http://www.tcmclinic.co.nz

Wishing the best for your husband.

[Cindi Anderson]

Thanks, interesting. He is taking LDN and hasn’t noticed a difference, but hasn’t gone past 2mg. (He weighs 145 pounds.) Do you take it at night or in the morning?

[Gregory Pilcher]

I took it in the morning, though I don’t think time of day made a difference. I gave you the shorthand version. Now knowing your husband already is taking it, here’s more detail that may be helpful.

I mentioned we started at 0.5 mg and went up in 0.5 mg increments. We stayed at each dose for 1 week before moving on. It took the pharmacy several days to compound a prescription, so I would order the next dose while still taking the previous one. I got to 2.5 mg with no improvement and ordered the next dose, 3 mg, for the next week. About four days into the 3 mg week, my symptoms completely disappeared, but I already had ordered the next dose (3.5 mg). So, I started the 3.5 mg week, and four days later all symptoms returned.

So, we had found the right dose — 3 mg. I replaced the ineffective 3.5 mg dose with a 30-day supply of 3 mg, and four days after replacing the 3.5 mg dose with 3 mg all symptoms disappeared. So, we had determined two things — for me (i) 3 mg worked and (ii) it took four days for 3 mg LDN to work (and to stop working).

I don’t like to take meds — I’m 66 years old, and I do not take any prescription meds of any kind. Every few weeks for over a year I would try to stop the LDN. Each time, after about four days of no LDN, all symptoms would return. And then about four days after re-starting LDN the symptoms would completely disappear. Eventually, after over a year, I was able to stop LDN without a return of symptoms. That was three years ago.

LDN truly was a miracle cure for me — I was never suicidal, but my experience with long Covid caused me to understand how a medical condition could lead someone to wanting to end their life. That said, I’m not an LDN expert. I know only about my own experience. Based on my experience, IF LDN is something that would work for your husband, then perhaps he simply hasn’t found the right dose.

The other detail I didn’t mention above — I played around with the dose during the year+ that I took LDN. I mentioned 3 mg because that’s the first dose that worked. But over the course of that year, I refined my dose and ended up using 2.8 mg. I also tried splitting the dose — taking 1/2 in the morning and 1/2 at night (at the suggestion of a new doc who wasn’t experienced with LDN). Splitting the dose made no difference but cost twice as much because at low doses the pharmacy charged by the pill and not by the dose, so I went back to a single 2.8 mg dose until I eventually was able to stop altogether. I had no adverse effects of any kind from LDN. My desire to stop LDN was based solely on the idea that it’s always best to avoid meds once they aren’t needed.

I’ve often wondered how practitioners who regularly use LDN determine the right dose. Everything I read confirms the effective dose will be different for each person. I remember finding a London-based LDN practitioner with a good website with lots of information about LDN. She spoke at conferences about using LDN for MCAS and other things, but I never found anything that offered meaningful advice about how to determine the right dose. I’m in the US and couldn’t get LDN without a prescription, and I needed a compounding pharmacy to make and dispense it. My physician knew nothing about LDN but was openminded enough to research it and found other practitioners who had experience with it and could offer guidance, but using LDN remained a trial and error process for me.

• This reply was modified 3 days, 12 hours ago by  Gregory Pilcher.

[IMA-HelenT]

Sorry that your husband is suffering, I know our protocol was mentioned, other resources include the React 19 website https://react19.org/ and watch Senior fellow Dr Tina Peers talking about her use of Augmented NAD https://www.youtube.com/watch?v=4NEAggrU9ps