Peripheral neuropathy and neurological disorders

  • Gary Graziano

    Member
    May 12, 2026 at 3:26 pm EDT

    I’d love to help with a recommendation, but I don’t know any neurologists. I suffer from neuropathy, too, and haven’t found any MD (in MA or KY where we’ve lived the past 15 yrs.) that knows what caused it or what to do about it. I’ve had offers of risky and speculative surgeries, which I declined.

    I live in Eastern KY, and would appreciate it if you’d let us know if you find someone helpful within your area.

    I received one clue recently, which provided a relatively safe and inexpensive therapy to try. You can read about it on Robert Yoho’s Substack called Surviving Healthcare. Here’s a link to an article that talks about thiamine therapy for neurological diseases like Parkinson’s. He mentions it may also have benefits for for people with neuropathy: <https://robertyoho.substack.com/p/425-high-dose-thiamine-hdt-is-the?

    I bought some thiamine (B1) and a B-complex that DOES NOT include B6. (He suggests supplementing with magnesium, and eliminating any B6 supplementation if you try this.) Dr. Yoho (retired) suffers from Parkinson’s Disease, and writes a lot regarding neurological issues. I hope this helps!

  • IMA-HelenT

    Organizer
    May 12, 2026 at 3:59 pm EDT

    Please explore our providers list, it is still in it’s infancy but may be helpful: https://imahealth.org/providers/

    Here is a link to our guide on red light therapy / photobiomodulation as it may be helpful.

    Red light therapy is very commonly discussed in relation to:

    peripheral neuropathy

    nerve pain

    diabetic neuropathy

    nerve regeneration

    inflammation reduction

    circulation improvement

    The theory is that red and near-infrared light may help support mitochondrial function, blood flow, and cellular repair in damaged nerves.

    There are studies looking at diabetic peripheral neuropathy in particular, with some reporting:

    reduced pain

    improved sensation

    better wound healing

    improved circulation

    Guide https://imahealth.org/wp-content/uploads/2025/06/ima-red-light-therapy-guide.pdf

    • Leslie Malek de Pasian

      Member
      May 12, 2026 at 8:15 pm EDT

      Thank you for your information, Helen.

    • Leslie Malek de Pasian

      Member
      May 13, 2026 at 7:24 am EDT

      Good morning, Helen. Thanks for the informtion about red light therapy. It seems that the REFERENCES section is missing from the guide on red light therapy / photobiomodulation publication that you included in your message. If someone forgot to add that section, could you kindly resend me the guide including the Reference section? If the guide does not include references, what information do the doctors of the Independent Medical Association rely on in recommending this treatment?

  • IMA-HelenT

    Organizer
    May 12, 2026 at 4:12 pm EDT

    Hi @carmen …just in case you hadn’t done an AI search yet, I did, perhaps it will help:

    Here are a few strong options that look genuinely experienced with peripheral neuropathy and neuromuscular disorders in the Ohio / Indiana / Michigan / Kentucky region:

    Michigan (probably the strongest program regionally)

    The University of Michigan has a dedicated Peripheral Neuropathy Program and is considered one of the stronger academic centers in the Midwest for neuropathy evaluation and treatment.

    Good specialists there include:

    University of Michigan Peripheral Neuropathy Program

    Specialists include:

    Dr. Amro Stino

    Dr. Eva Feldman

    Dr. Brian Callaghan

    Dr. Benjamin Becker

    They handle:

    small fiber neuropathy

    autoimmune neuropathy

    CIDP / GBS

    diabetic neuropathy

    nutritional neuropathy

    post-viral and complex neuropathies

    second-opinion cases

    📞 Main number: 734-936-9020

    https://www.uofmhealth.org/conditions-treatments/brain-neurological-conditions/peripheral-neuropathy-clinic

    Indiana

    A few neurologists repeatedly came up in patient recommendations:

    IU Health Neurology

    Mentioned positively for neuropathy care:

    Dr. Rusk

    Dr. Scheer

    Dr. Nevel

    Goodman Campbell Brain and Spine

    Mentioned by patients as a much better experience than some larger neurology groups.

    Ohio

    You may want to look specifically at:

    Cleveland Clinic Neuromuscular Center

    Ohio State Wexner Neurology

    Cleveland Clinic in particular is nationally known for neuropathy and neuromuscular disorders, though the Michigan program above may be easier to access depending on wait times.

    Kentucky

    The strongest likely option would be:

    University of Kentucky Neurology

    UofL Health Neurology

    For more complex or unexplained neuropathy cases, people often still end up referred onward to larger specialty centers like Michigan or Cleveland Clinic.

    Honestly, if this is:

    unexplained neuropathy

    worsening symptoms

    small fiber neuropathy

    autoimmune suspicion

    post-viral / vaccine injury concerns

    dysautonomia

    burning pain / numbness progressing

    …I would personally put University of Michigan Peripheral Neuropathy Program at the top of the list from the states you mentioned. They seem to have the most dedicated neuropathy infrastructure.

  • Dr. Rafael F. Cruz MD

    Member
    May 12, 2026 at 5:21 pm EDT

    Kentuckiana Neuro-Recovery Center

    Hello, this is Dr. Rafael F. Cruz, MD.

    We’re a small clinic and often busy with current patients, so replies may be delayed—we’re working on this challenge. If we do not respond within 24 hours, please call 812-913-4416 or email [email protected].

    This message is long, but it will answer most questions about stroke, Parkinson’s, TBI, dementia, Peri-spinal Etanercept (PSE), and Regenerative Therapies. Please read it twice to clarify next steps and prepare questions for your consultation.

    Kentuckiana Neuro-Recovery Center
    Supporting Neurological Function After Injury or with Degenerative Conditions.

    Educational Focus Areas: Parkinson’s Disease, Stroke, Traumatic Brain Injury, Long-COVID Neurological Symptoms, Spinal Cord Injury, Dementia, ALS, Neuropathy, Multiple Sclerosis, and CRPS.

    *Conditions listed are for educational purposes only and do not imply treatment efficacy.

    Services offered are individualized and supportive. A medical evaluation is required to determine appropriateness.

    Neurological Relief Starts Here

    Schedule now: 812-913-4416 (call or text with best times to reach you)

    Video or In-Person Consultation fee: $400 (paid in advance; video or in-person)

    Insurance: These services are NOT covered by insurance; even with considerable clinical evidence they are considered experimental/off-label and are therefore not covered by insurance. Since these services are not covered by insurance, there are no applicable insurance billing codes. Attempting to file or submit a claim may be considered insurance fraud, therefore, we cannot assist with or endorse any insurance submissions for these therapies.

    Fee Range $4,500 for PRP, PSE – Perispinal Etanercept $10,500, Stem cellular biologics $17,500, and $60,000 SUPER BRAIN & BODY ANTI-AGING PLAN (5× higher dose; up to 6 joints; Ketamine; PSE -Perispinal Etanercept if your lab test results normal.

    FDA Disclaimer: Services are NOT covered by insurance are off-label, not FDA-approved for these indications. Results vary by patient and are not guaranteed. Therapies aim to support natural healing and may help improve function and quality of life. Unpaid testimonials and case studies reflect individual experiences and do not guarantee similar results.

    Why Consider Us

    Experience: 30+ years of clinical medicine experience; Emergency Medicine (Board-Certified twice), 2 years Anesthesia training with focus on pain management procedures; 20+ years in Integrative/Regenerative Medicine, Ketamine therapy, Neuro-rehabilitation strategies.

    Training & Affiliations:
    Founding Member of Academy of Ozone Therapy http://www.aaot.us (AAOT) Member
    American Academy of Stem Cell Physicians http://www.aascp.us (AAOT) Member. Trained in Fluoroscopy and Ultrasound guided injections.
    ACAM American College for The Advancement of Medicine (acam.org) Member Certified in IV Therapy and IV Chelation IMA/FLCCC (imahealth.org; formerly FLCCC) Member
    Prolozone (oxygenhealingtherapies.com)
    Prolotherapy (getprolo.com)

    Approach: We blend modern MD/DO Medicine with Integrative, Functional & Regenerative Medicine (Perispinal Etanercept, nutritional programs, PRP, Personal Mesenchymal Cell–based Therapies, Prolozone, Ketamine, Microcurrent Neuromodulation, Targeted Neuro-rehab).

    From Brain Fog to Brain Focus

    Conditions we have supported: Stroke, TBI, Parkinson’s, MS, CRPS/RSD, ALS (supportive care), hypoxic/anoxic brain injury, spinal cord injury.

    Peri-spinal Etanercept (PSE): A patented, specialized method (pioneered by Dr. Edward Tobinick) aimed at reducing neuro-inflammation (TNF-mediated). Some patients notice changes within minutes to hours; improvements may last 12–24+ months (variable). Some longer. Impossible to predict. Proper training and technique are essential to effectiveness.

    Important: Many physicians who report “no benefit” did not train in PSE Perispinal etanercept delivery. Technique matters.

    Case Study Examples (Unpaid Testimonials, Individual Results Vary)

    Featured Videos: Patient Experiences & Educational Media

    The following videos include patient experiences, physician discussions, and third-party media segments shared for educational purposes only. Individual responses vary, and no outcomes are guaranteed. Perispinal etanercept is discussed for educational purposes only. Its use is off-label and is not FDA-approved for the treatment of neurological diseases. Individual responses vary.

    Video: Physician Discussion Brain Injury Consultation – Dr. Cruz Explains

    Video: Patient experience: Stroke – Edward Wilks

    Video: Patient experience: Parkinson’s Functional Improvement Louis Meier

    Video: Physician Interview: Patient experience Stroke – Dr. Alan Olo (TRIGENIX Inventor)

    Video: Educational review: Perispinal Etanercept Case Studies This is a third-party news segment and does not represent a treatment claim by Kentuckiana Neuro-Recovery Center.

    Video: Third-Party Media Segment: Stroke-Related Changes – [60 Minutes Australia] (Linda) This is a third-party news segment and does not represent a treatment claim by Kentuckiana Neuro-Recovery Center.

    Video: [Third-Party Media Segment : Investigational Neurological Therapies in Dementia 60 Minutes Australia-Charlie] This is a third-party news segment and does not represent a treatment claim by Kentuckiana Neuro-Recovery Center. Media terminology such as “miracle” reflects journalistic language and does not imply treatment claims or guaranteed outcomes.

    Video: Patient Experience Cindy Moore (Failed Back Surgery Syndrome, severe RA)

    John Dutenhaver (History Stroke, foot drop): After Neuro-Brain PRP, Cane and Ankle-Foot Orthosis (AFO) Foot Drop brace within ~2 hours removed—then danced with his wife.

    Kevin Duffy (History Severed nerve/foot drop): 3 sessions 80% muscle restoration; foot drop corrected; unexpectedly, both shoulders improved without direct injection therapy.

    David Allen (Stroke, 2017): After >400 hours of Physical Therapy at other PT clinics, Mr. Allen learned more effective methods in one hour with our neuro-rehab Physical Therapy – Miriam. Within hours of PSE, he stood and walked with ease compared to pre-therapy baseline.

    Emily Asllani (spinal cord injury, C2; Down syndrome): ~18 months post-injury—after personal regenerative therapy, movement returned in hours; standing with reduced pain in 48 hours; improved purposeful use of dominant arm (PT-documented).

    Call 812-913-4416 to schedule your Neurological Consultation

    Note: My father Dr. Rafael M Cruz MD suffered a cervical spinal cord stroke leaving him a partial quadriplegic. He responded very favorably to Perispinal etanercept therapy every 1-2 years. This allowed him to recover sufficient function to get out of a chair without assistance and to climb a 10 step staircase very slowly but without help. These tasks were impossible before PSE.

    How PSE – Perispinal Etanercept Works:
    Goal: Reduce chronic neuro-inflammation (TNF/TLR-driven) that can persist years after stroke/TBI and fuel pain, spasticity, dysphasia, gait issues, and cognitive deficits.
    Evidence: RCTs and large observational series (e.g., central post-stroke pain; shoulder ROM; mood; gait; speech) show meaningful functional signals; not FDA-approved for these indications (off-label)
    Durability: Average 12–36 months; some do not require repeats; others repeat PSE within weeks to extend gains or later if symptoms return.

    Regenerative Injections that Support Neuroplasticity

    We often layer PSE with Regenerative Injections to stimulate neuroplasticity, perfusion, and tissue support:
    Personal Hyper-concentrated PRP (large-volume, proprietary processing, photo-energized, + procaine + vitamins + Prolozone/Prolotherapy)
    Personal Mesenchymal Signaling Cell Therapy (from your bone marrow or adipose, when appropriate)
    Prolozone and Prolotherapy (support ligament/tendon stability, perfusion, and pain modulation)
    Ketamine Therapy (BDNF release; mood/pain benefits; used by anesthesiologists/EM/critical-care experts)
    Advanced Microcurrent Device (FDA-cleared for pain; daily home use to reinforce neuro gains)
    Safety Note: Personal PRP and personal mesenchymal harvesting have very low risk (autologous). Cellular biologics such as Amniotic, Placenta and or Umbilical tissues are sourced safely and ethically from healthy mother-babies who donate these tissues.
    We discuss risks (e.g., bleeding, vessel/nerve injury, infection—rare; adipose mini-liposuction and BMA procedural risks) during consultation.

    Second Chance After a Stroke — Are You a PSE Candidate?

    You are NOT a PERISPINAL ETANERCEPT Candidate if any of the following apply: active infections (TB- Tuberculosis, viral, fungal, parasitic), active cancer (need ≥5 years remission), organ transplant, chemotherapy/immunosuppressants, bleeding disorders (e.g., hemophilia), cytopenias, immune system disorders, lymphoma, HIV/AIDS, granulomatosis with polyangiitis, bone marrow disorders, demyelinating disease (MS, transverse myelitis, optic neuritis, Guillain-Barré), active hepatitis, uncontrolled diabetes, active CHF, recent seizures (relative), any vaccination within prior 6 months, pregnancy or breastfeeding, or concurrent biologics (must be stopped ≥4 weeks). Full list reviewed at consult.

    If you are not a PSE Candidate, consider our Regenerative Medicine Injection options.

    Brain Injury Recovery—Evidence-Informed Options (Pricing)

    (Fees reflect case complexity, selections, and staffing availability. We’re typically 25–75% less than many U.S./Mexico/EU centers and include extras others don’t.)
    $17,500 – Neuro-Brain with Personal Harvested Mesenchymal Cellular Therapy (Brain-targeted + IV). Repeat within 12 months: $12,500.
    $10,500 – Peri-spinal Etanercept (PSE) (Stroke/TBI/MCI). Repeat within 12 months: $8,500.
    $6,500 – Neuro-Brain Dementia (Expanded Access: TB006).
    $3,500 – Neuro-Brain PRP (Brain + IV); repeat within a year $2,500.
    $4,000 – Ketamine Therapy (3 sessions) (growth of synaptic connections; mood/pain relief; BP/HR must be controlled).
    $5,000 – Advanced Microcurrent Device (critical for long-term home reinforcement).

    Joint/Spine (pain, tendon/ligament):
    $1,500 – Personal Hyper-concentrated PRP (per joint)
    $4,500 – Personal Mesenchymal Cellular Therapy (per joint) (includes Prolozone, Prolotherapy, proprietary PRP)
    Spine protocols priced separately (complexity/time)
    Bundle Savings: Choose 2+ therapies → $1,000 discount on selected items (exclusions noted in your original schedule remain).

    SUPER BRAIN & BODY ANTI-AGING PLAN – $60,000

    (Comprehensive; priced far below many U.S./EU/Mexico packages; not for everyone.)
    5× (500%) the standard dose of brain-targeted personal cellular therapy (+ IV), plus up to 6 joint injections [shoulders, hips and knees], Ketamine, PSE (if all labs normal), IV vitamins (when staffing allows), and Physical Therapy evaluation/plan [when available].
    Illustrative “rack-rate” total ≈ $137,000; your program $60,000 (save ≈ $77,000).
    Goal: cellular support, reduced inflammatory burden, neurovascular support, healthier aging signals.
    Research Example References (aging/MSC biology):
    Stanford: “Old human cells rejuvenated with stem-cell technology”
    NIH/PMC: “Stem cells to reverse aging”

    Evidence, References & Links (as provided)

    Stanford: Old human cells rejuvenated with stem-cell technology
    https://med.stanford.edu/news/all-news/2020/03/old-human-cells-rejuvenated-with-stem-cell-technology.html

    NIH/PMC review: Stem cells to reverse aging
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9276428

    More info and videos:
    https://regenmedky.com/kentuckiana-md-brings-new-hope-to-stroke-brain-injured-parkinsons-and-depressed-patients/
    YouTube Channel: https://www.youtube.com/channel/UC-1mzJmWaGUsV8-recYEA3A

    Process & Next Steps (Action List)

    Book your consultation (video or in-person): 812-913-4416. (Payment required when you schedule your consultation.)
    Reschedule & Refund Policy for Consultation: If you cancel ≥2 business days in advance (not Fri–Sun), no penalty to reschedule or 100% refund
    Before or After consultation, send available records: MRI brain report, labs, last clinic note.
    Complete intake form: Neurological Health Intake Form | Kentuckiana Integrative Medicine (link as in your current workflow).
    Labs: After Consultation, Dr Cruz will email you a prescription order for a blood draw you can take to Labcorp/Quest. Please email to [email protected] ALL RESULTS TOGETHER in one email message for review, then call to confirm receipt. Labs valid ~4 months.
    Selection & Invoice: Email us the therapies you want (copy/paste from menu below). Manager will prepare your invoice.
    Payment for Therapy: Bank wire preferred; or credit card (3% convenience fee). Payment must be received before scheduling therapy days (we block 15–30 clinical hours and multiple team members). You should be fully committed to your Therapy plan before purchasing
    Therapy Scheduling & Travel: Once payment is confirmed, we schedule your therapy (typically 2–8 weeks). If traveling, arrive 1–2 days before.
    You should be fully committed to your Therapy plan before purchasing.
    Therapy Reschedule policy: $1,000 fee for cancellations (staff travel/time).
    Therapy Refunds: If you cancel ≥2 business days in advance (not Fri–Sun), 100% refund minus $1,000.
    Lifestyle Program: To maximize and sustain results, follow the diet/omega-3/PT/microcurrent plan below.

    Nutrition & Lifestyle (What You Can Start Today)

    Mediterranean-style anti-inflammatory diet (or Paleo/Keto if truly strict).
    Omega-3 DHA/EPA daily (high-dose, concentrated)—data suggests brain protection.
    Avoid processed foods, refined carbs, sugars, artificial sweeteners.
    Organic proteins/produce when possible; no smoking; hydration; sleep.
    PT/Neuro drills: 10 minutes × 4/day to “wire and fire” new neurological pathways.
    Consider microcurrent device nightly; brain training apps (e.g., Lumosity).
    Literature examples cited in your message remain (J Neurosurg; WUSTL DHA study; DMSO references).

    Peri-spinal Etanercept—Safety Snapshot

    Single administration; repeat optional (e.g., 2–8 weeks) based on response.
    Contraindications and biologics hold (4+ weeks) reviewed above.
    We have not observed adverse effects in our clinic cases for over ~10 years (anecdotal; your experience may vary).
    20% may experience NO BENEFIT from PSE— which is why we often layer regenerative options.

    Pricing Menu — Copy/Paste & Email Back

    NEURO-BRAIN Therapy Option Summary (with optional discounted joint & ketamine add-ons):
    $17,500 Neuro-Brain Personal Human Harvested Messenger Stem Signaling Cell Therapy
    $10,500 Neuro-Brain Peri-spinal Etanercept
    $6,500 Neuro-Brain Dementia (“Expanded Access” TB006)
    $4,500 Neuro-Brain PRP (Personal Proprietary Hyper-concentrated Platelet-Rich Plasma)
    $4,500 Joint Injection with Personal Human Harvested Messenger Signaling Cell Therapy
    $1,500 Joint Injection with Personal Proprietary Hyper-concentrated PRP
    $4,000 Ketamine Therapy (3 sessions)
    $5,000 Advanced Microcurrent Device
    $60,000 SUPER BRAIN & BODY ANTI-AGING PLAN (5× dose; up to 6 joints; Ketamine; PSE if labs normal)

    IV MSC Add-Ons (same-day window):
    $5,000 Collection (adipose/bone marrow)
    $3,500 10M equivalent MSC
    $6,000 30M equivalent MSC (save $4,500)
    $15,000 70M equivalent MSC (save $9,500)
    $20,000 100M equivalent MSC (save $15,000)

    Financing (practice discretion): $600 processing + 50% deposit, balance over 12 months (no interest/fees). Example: $6,500 → $3,500 deposit, then $250 × 12

    Therapy Payment, Scheduling & Hotels

    Payment: Bank wire (preferred) or credit card (+3% convenience fee).
    Wire Details:
    Bank: JPMorgan Chase Bank, NA | Routing: 021000021 | Acct: 000000613612915
    Beneficiary: Wyoming Integrative Medicine and Pharmacy dba Kentuckiana Integrative Medicine
    Address: Clarksville, IN 47129-2537 | SWIFT/BIC (intl): CHASUS33
    Therapy Scheduling: Once payment is confirmed, we schedule your therapy (typically 2–8 weeks). If traveling, arrive 1–2 days before.
    You should be fully committed to your Therapy plan before purchasing.
    Therapy Reschedule policy: $1,000 fee for cancellations (staff travel/time).
    Therapy Refunds: If you cancel ≥2 business days in advance (not Fri–Sun), 100% refund minus $1,000.
    Travel / Hotels:
    Radisson Hotel Louisville North — Contact Ray Smith, Dir. of Sales, 812-283-1603; Patient rate ~$80 + tax. [depending on season]
    TownePlace Suites by Marriott (Called Louisville North Located in Jeffersonville, IN; handicap rooms/kitchenettes; typically $100–$150/night. 310 West Maple St. Jeffersonville, IN 47130, 844-631-0595. Please call, ask to speak with the manager for special rate for patients of Dr. Cruz, Kentuckiana Integrative Medicine. The manager can provide the current discounted rate for Kentuckiana Integrative Medicine based on your travel dates.
    We don’t recommend staying in Louisville (driving stress).

    Advanced Care When “Nothing Else Helped”

    Call now to schedule: 812-913-4416

    If we miss you, please text/call with 2–3 best call-back times and confirm if text is okay.

    Legal/Medical Notices (unchanged):
    Not medical advice for your specific case until you complete a consult.
    Services not covered by insurance are off-label, not FDA-approved for these indications.
    Results are not guaranteed and vary widely by individual health factors.
    Unpaid testimonials reflect individual experiences and do not imply typical results.

    Learn more from Video Testimonials:
    Overview of Services: DISCOVER WHAT’S POSSIBLE Kentuckiana Integrative Medicine & Kentuckiana Regenerative Medicine Overview Video
    Brain Injury, Stroke, Parkinson’s & Depression: https://regenmedky.com/kentuckiana-md-brings-new-hope-to-stroke-brain-injured-parkinsons-and-depressed-patients/
    Heart & Vascular Support: https://regenmedky.com/heart-and-vascular-blood-vessel-disease-support/
    Ketamine for Pain & Mood (Veterans eligible via VA referral): https://regenmedky.com/depression-ocd-pain-crps-reversed-with-ketamine/
    Joint/Soft-Tissue Self-Healing : https://regenmedky.com/messenger-signaling-cell-therapy-injections/
    Neuropathy: https://regenmedky.com/how-we-treat/neuropathy/
    CRPS Options: https://regenmedky.com/ketamine-neridronate-therapy-complex-regional-pain-syndrome/
    Men’s ED/Prostate/Stress Incontinence Support: https://regenmedky.com/how-we-treat/p-shot-erectile-dysfunction-treatment/
    Women’s Sexual Health & Stress Incontinence Support: https://regenmedky.com/how-we-treat/the-o-shot-treatment/
    HRT (Men): https://regenmedky.com/how-we-treat/hormone-replacement-therapy-for-men/
    HRT (Women): https://regenmedky.com/how-we-treat/hormone-replacement-therapy-for-women/
    Medical Weight Loss: https://regenmedky.com/medical-weight-loss-louisville/
    PATIENT TESTIMONIALS YouTube: https://www.youtube.com/channel/UC-1mzJmWaGUsV8-recYEA3A

    NEXT STEPS IF NOT YET COMPLETE:

    Book Your Neuro Consult (812-913-4416)
    Send Your Records (MRI/Labs/Last Note)
    Obtain Testing Results and Email as ONE BUNDLE WHEN ALL TESTING COMPLETE
    *Select Therapies you want to receive. Request Invoice & Pay by Wire

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