On protocols with Parkinson’s, Lewy Body, ALS?

  • On protocols with Parkinson’s, Lewy Body, ALS?

    Posted by David Wegener on November 20, 2025 at 11:14 pm EST

    I’m looking for help with several neurological issues: Lewy Body, PD, and another yet-unknown neurological issue with a friend – ALS-like symptoms, but it’s been ruled out.

    I know that Dr Makis has published some case notes on patients self-reporting dramatic improvements to PD symptoms while on IVM & FBZ/MBZ.

    Are there any particular IMA groups known, or data known WRT repurposed drugs, nutraceuticals, etc, on these neuro issues?

    The typical PD treatments are loosing ground in this particular case, and the patient is open to any options and recommendations.

    IMA-GregT replied 6 hours, 18 minutes ago 4 Members · 4 Replies
  • 4 Replies
  • Giselle Sanders

    Member
    November 21, 2025 at 11:20 am EST

    I don’t have any information on IVM & FBZ/MBZ but the information below may be of interest:

    Impact of a keto diet on symptoms of Parkinson’s disease, biomarkers, depression, anxiety and quality of life: a longitudinal study

    https://keto-mojo.com/research/keto-parkinsons-quality-of-life/?

    “For 24 weeks, participants followed a ketogenic diet providing approximately 1750 calories and 152 grams of fat, 75 grams of protein, and less than 20 grams of net carbohydrates daily.

    Participants reported enhanced cognitive function, mood, motor and nonmotor symptoms; reduced pain and anxiety; and overall improvements in quality of life. All seven expressed a commitment to maintaining the ketogenic diet for ongoing health benefits.”

    So You Have Parkinson’s Disease—Now What?: An Eight-Year Research Review into Metabolic Health and Hope

    https://keto-mojo.com/blog/so-you-have-parkinsons-disease

    Are Ketones the cure big pharma doesn’t want you to know about? With Dr. Stephen Cunnane

    https://youtu.be/BFEKYHJIr0Y?

    Parkinson’s mentioned around 55 min mark.

    Bedridden No More: Carnivore Journey to Overcome Parkinson’s, RA, Stroke & Thrive!

    https://youtu.be/VkTq-3-Gjx8?

    Episode 218: “I Ate ONLY ONE Food And My Parkinson’s REVERSED!” | Mimi Morgan

    https://theplantfreemd.libsyn.com/episode-218-i-ate-only-one-food-and-my-parkinsons-reversed-mimi-morgan

    ————————

    Books:

    Natural Therapies For Parkinson’s Disease by Dr Laurie Mischley

    Ending Parkinson’s Disease: A Prescription for Action by neurologist Dr. Ray Dorsey.

    The Radical Message Behind the New Book, The Parkinson’s Plan: “We Have a Chance to Get Rid of This Disease”

    https://www.themahareport.com/p/the-radical-message-behind-new-book?

    ——————

    Benefits of Vitamins in the Treatment of Parkinson’s Disease

    https://onlinelibrary.wiley.com/doi/10.1155/2019/9426867

    http://www.doctoryourself.com/parkinson.html

    ——————

    Dysbiosis of gut microbiota and microbial metabolites in Parkinson’s Disease

    https://www.sciencedirect.com/science/article/abs/pii/S1568163718300680

    ——————

    RHR: A Functional Medicine Approach to Parkinson’s Disease

    https://chriskresser.com/a-functional-medicine-approach-to-parkinsons-disease/

    New Research and Treatments for Parkinson’s Disease

    https://chriskresser.com/new-research-and-treatments-for-parkinsons-disease/

    ——————

    Parkinson’s hope as scientists find a probiotic can stop and even REVERSE the build-up of toxic clumps in brain that cause tremors

    https://www.dailymail.co.uk/health/article-7882441/Parkinsons-hope-scientists-probiotic-bacteria-stop-REVERSE-toxic-clumps.html

    “Parkinson’s hope as scientists find a probiotic can stop and even REVERSE the build-up of toxic clumps in brain that cause tremors

    Probiotic bacillus subtilis prevented the formation of toxic clumps of protein

    Alpha-synuclein blocks production of dopamine, which controls movement

    Campaigners said findings were ‘exciting’ as they highlight link to the gut”

    ——————

    Treadmill exercise elevates striatal dopamine D2 receptor binding potential in patients with early Parkinson’s disease

    https://pubmed.ncbi.nlm.nih.gov/23636255/

    Dr. Giselle Petzinger, an associate professor of Neurology at the University of Southern California studies the extensive effects of how different types of exercise, in particular skill-based exercise, can affect the clinical outcome for people with Parkinson’s disease.

    https://www.foundmyfitness.com/episodes/giselle-petzinger

    ——————

    Light, Obesity, and COVID-19 – The Melatonin Connection

    https://www.evolutamente.it/en/light-obesity-and-covid-19-the-melatonin-connection/

    “interestingly, extensive research on melatonin indicates that this chemical of darkness plays an exceedingly protective role in neurodegenerative diseases, especially in Parkinson’s disease, and Alzheimer’s disease [49-53].”

    ——————

    Advances in Characterizing Recently-Identified Molecular Actions of Melatonin: Clinical Implications

    https://pmc.ncbi.nlm.nih.gov/articles/PMC7164543/

    ——————

    Nicotine does WHAT in Parkinson’s?!?!

    https://www.youtube.com/shorts/bkqfMTHDtXE

    Look up Dr Bryan Ardis for more on Nicotine and nicotine patches.

    ——————

    https://www.facebook.com/share/p/1CzrxcY83B/?

    In a stunning discovery, researchers at the University of Sydney have successfully reversed Parkinson’s-like symptoms in mice by restoring balance to a single brain protein SOD1. Normally protective, this protein goes rogue in Parkinson’s disease, clumping and damaging neurons.

    The scientists used a targeted copper supplement to stabilize SOD1, and the results were remarkable: the treated mice regained normal movement, while untreated ones continued to decline. The findings suggest that correcting this protein’s malfunction could halt or even reverse the disease’s progression.

    While human trials are next, the study opens an exciting new direction for treating Parkinson’s not by masking symptoms, but by repairing what’s broken at the molecular level.

    Source: University of Sydney, Acta Neuropathologica Communications (2025) DOI: 10.1186/s40478-025-02048-2

    ——————

    Addressing the Neuroprotective Actions of Coffee in Parkinson’s Disease: An Emerging Nutrigenomic Analysis

    https://pubmed.ncbi.nlm.nih.gov/36009304/

    ————–

    You could find a Functional Medicine Practitioner to work with (Most do online consultations):

    https://www.ifm.org/find-a-practitioner/

    • IMA-GregT

      Member
      November 23, 2025 at 12:16 pm EST

      Thanks @pg really helpful

  • David Wegener

    Member
    November 21, 2025 at 11:37 am EST

    wow – thanks for that data dump! super helpful!

  • Dr. Wawa

    Member
    November 21, 2025 at 12:48 pm EST

    Internist Lawrence Broxmeyer documents voluminous references to older medical literature showing extreme similarity between Parkinson’s and malarial “brain fever”. He suggests that Parkinson’s patients therefore be treated for malaria.

    His books are sold on amazon.

    Also, the substantia nigra is interestingly an iodine-rich region of the brain.

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